Profiles - Who We Are
The executives of YPAHD are just like you; most of us are directly affected by HD, others have become connected to the organization because they want to help us further the cause.
YPAHD's goal is to make youth feel connected through this disease. We have therefore each written a little about how we began our "journeys" with Huntington's Disease and where we are today. If you feel as though you connect with one of our executives, please feel free to send them an email. They would be more than willing to help answer some of your questions to the best of their ability. Just send an email to ypahd@yahoo.ca, with their name in the subject line.
My story begins around the time I was 8 years old (1990). I remember my father always arguing with my grandfather. At the time he was trying to take away his driver's license, but I figured this was due to ...
My story begins 15 years ago when I was 9 years old. It was at this time when my Oma began to show unusual behaviors and an odd unsteadiness in her movements. Being only a kid at the time, I can't really ...
I was in grade six when my grandmother was diagnosed with Huntington Disease. My family was not familiar with HD, and when we learned about the hereditary nature, we realized the impact it would have on all...
Before I was born, my grandfather died of Huntington's Disease, and this past summer my mom passed away from HD as well. My mom was sick for 25 years so I never knew her without the illness. My life was ver...
I'm 24 years old and grew up on a beef cattle and horse farm in mid-western Ontario. Currently I am studying at the University of Calgary. Although my immediate family does not have a history of HD, perso...

